Saturday, March 12, 2011

What a difference a year makes!




It is hard to believe that Grady's first year is complete. What a challenging, yet blessed, year my family has had. You all have taken this long journey with us. One of our many blessing, this year, has been your support, prayer and love. Without that, we would not be here today. Thank you.
A long time has passed since we last talked. With Grady home, it has been a little busy around here. Every time I promise to keep this up, something gets in the way. So, no more promises. Hopefully, there will be more time, now that Grady has us on a schedule. He is still taking his feeds every three to three and half hours, but has increased his intake to 6 ounces. Little G is weighing in at 14.2 pounds and is 25 1/2 inches long. He has moved through the 6 months clothes and into the 9 month sizes. That is a lot of growth in two months.
Grady has one of the best big sisters around. She can make him laugh more than any of us can.
This little boy will bust out with one of those smiles that just makes you laugh. The boy is also trying to talk around his trach. If you listen, he will push air hard enough to make a small squeak. Again, that makes all of us laugh along with him.
Grady had another surgery several weeks ago. He got to spend the night in Daddy's travel trailer the night before. All went very well and we had Pants back home Saturday afternoon. Ten days later the stitches came out and our little guy got an all clear. He will have a follow up MRI soon to ensure all is working as intended.
You have to know, the first picture is on Grady's birthday. As you can see, we did not get much response from him. He sat in his high chair and stared at the cake. Poor little fella did not know what to do with that big blue Cookie Monster on his tray. Emma blew out his candle. That was the high light of the cake. Daddy gave him a taste of the icing, but G was not so impressed. He shivered! So much for his sweet tooth.
OH, I almost forgot. This morning Grady woke up with TWO bottom front teeth. Guess this little man of ours is not going to waiste any time cutting teeth. Let's just get this over with and do it by twos.
Well, there is so much more to tell you, but this will go on forever if I don't stop now. And, hello everyone at CCSD and First Bank. I will be back with more news and pictures.
Talk soon,
JoJo


Saturday, January 15, 2011

Snuggling In



Well, Grady is getting all snuggled in at home. He has had three weeks to learn how to rule the roost. He is doing a great job at that in case you were wondering. As you can see, Emma and Grady enjoy the same cartoon shows. You have to know how wonderful it is to see how Emma helps take care of our little man. She is such a wonderful help. We still have to remind her that Grady can not see her when she is that close to him, but most kids want to get nose to nose when they talk to babies. My favorite story, so far, is Emma getting up the second morning Grady was home. She came into the living room where Grady was eating breakfast. With sleep still in her eyes, she walked up to me and smiled at her brother as she reached for the alcohol gel to clean her hands before she touched Grady. You think we have asked her if her hands are clean a little too much? She is such a smart one, let me tell you.
Grady is doing very well on his new formula. He is gaining weight and growing out of his 6 month footed pajamas. We have not checked his length, but he is definately getting longer. We are still watching his calorie intake. He is enjoying some of the cereals and fruits Mommy got for him. This little boy might just get the hang of the spoon feedings. Since Grady has been home, he is beginning to control his head. It helps to have this many play toys holding and carrying him around. We have noticed that Grady is very interested in his surroundings. As you walk to a different room in the house, he is checking it out. It is a new blessing every day to wake up knowing that today Grady is going to enjoy another day at home.
Thank you, thank you for being patient with us. Once we get through the RSV season, Grady will be able to have more company. It is so hard not to just call everyone up and say come meet this little boy you have been praying for. One of these days, though.... Until then, just know how much you mean to us and how very thankful we are for your love and support. Your prayers have brought this little family together.
Talk soon,
JoJo

Thursday, January 6, 2011

Home! Need I say more!



As most of you know, Grady is home. It has been a wonderful, busy time. Grady got home on the 22nd of December, just in time for Christmas. Needless to say, it was the best Christmas present this family has ever had. Now that we are settling in and getting a routine started, the days are just vanishing. Grady has a meet and greet doctors visit today. Our little man is doing wonderful and it will be encouraging to see what his doctor thinks of his progress.
Having an immune weak child in the house, will bring its challenges. We are not taking Grady out right now. Visitors are few and far between. We hope you understand if you have not been invited over just yet. The doctors have warned the kids to keep Grady away from groups of people and to avoid having other children in the house until we see just how well he does. The reminders of pre-term statistics keeps us holding firm on visitors. Just know that we would love to have every one of you over here and plan to do just that. It will just have to be one or two at a time. Very soon, we will invite the kids over to see him. For now, we want to ensure that Grady is not one of the children that returns to the hospital within the first month of being home. His survival is our priority, but know that we can not wait until we can share him with his extended family members.
Grady has a new formula that seems to be working great for him. He is taking 130 ml by bottle and seems to be loving it. Sleeping all night is a blessing. Every now and then, we are getting up to clear his airway, but no sleep filled bottles. But be warned, once this little man is awake, he wants his groceries. Although, he does enjoy laying on his changing table and checking out his room. Grady will lay on that pad kicking his legs and looking around. You get to see his adorable smile while he his doing his leg lifts and kicks. Maybe it is the height of the table, who knows. This boy is loving his home.
Well, looks like there is a little noise coming from the napping boy. Better get off of here and go see what is needed. Again, thank you for all of your prayers and support. Knowing you are there gives my family comfort. Grady is a blessed little boy and so are we.
Talk soon,
JoJo

Monday, December 13, 2010

Family and Friends





Most of you know that Mommy and Daddy have been working on the house to get it ready for little G when he comes home. It has been one of those projects that grows. Take one thing down and find two more things that need to be corrected or replaced before the new goes in. This weekend, Mommy and Daddy did a 48 hour 'room in' with Grady. While they were living the family life, their dear friends were working their back sides off. The new floor is in! Thank you to all of you. I hope you know how much this means to the big kids. What a wonderful gift, to give up your weekend and give Mommy and Daddy one huge blessing. Time was getting short for this project and you all completed it and took major pressure off of the kids. At the risk of repeating myself, you are true family. God has blessed us by putting you in our lives. Our little man is going to grow up knowing that family has a much larger description than most people know.
As for our precious little man, he is getting so close to coming home. Once the rooming in weekends are completed, we will be getting ready for the day we bring Grady home. Once he is home, there will be new worries and concerns. Bringing an immune weak child home , will have its own fears. This little man may be 25 before he gets to see the light of day. The hospital staff have already begun to warn us that we need be sure we keep visitors to a minimum. Everyone will have to wash up before they can touch him. Little people will be discouraged from coming over to see him. One more period of time that Mommy and Daddy will worry. The RSV season is upon us so that will restrict the places that Grady will be taken to. Having a kindergartener will have its own concerns. We will be doing our best to keep big sister healthy. So, please don't stop praying for this little family. All of your prayers have assisted in getting Grady this healthy and he will continue to improve with the love you have given him. Hopefully, it will not be long before all the kids can live a more normal life and not have to be so cautious.
As always, thank you for your love, support and most of all your prayers. Also, a big THANKS to the work team that got this house so much closer to being completed. You did a great job.
Talk soon,
JoJo

Tuesday, December 7, 2010

Big Visitors to tell G Happy 9 months




Just about the time Grady starts growing and getting bigger, look what shows up! Now these are very Big Boys. Some of the Dallas Cowboys came to the hospital to visit the children. These boys were bearing stockings full of Cowboy stuff. The stocking is an official (clean) Dallas Cowboy sock. If you look closely over Grady's left, you will see a picture of this years Dallas Cowboy Cheerleaders. Um, does anyone have a 10 by 12 frame Grady can borrow? Mommy will this go with his new room decor?
Our little man is doing well. He has gotten back to his 13 pounds and he is 24 inches long. His little fat dimples are disappearing. His thighs are getting longer. Little G looks skinny and long. Guess his body finally knows it is safe to grow. Grady continues to do great with his breathing. He sleeps a little more than usual, but this breathing thing is hard work. And he is eating as much as he can have. Looks like this little man is trying his best to get home for Christmas. Keep up the good work, Grady Pants.
Well, I just wanted to share some of the fun the hospital has for the children. We have been told that this time of year brings a lot of visitors to hospital.
If any of you have ever wondered if prayer really works, go back to the top and look at the little man that needed prayer and got it. We feel so blessed to have such a strong extended family. There is not way to thank you enough for your prayer and support. Hugs.
Talk soon,
JoJo

Sunday, December 5, 2010

Busy, Busy times






It has been a long time since we last talked. Grady's world has really gotten busy. He has been working very hard to get off the respirator. You can see, in his picture with Momma, that he has a new attachment on his trach. This is an HME or artificial nose. This allows Little G to be free of the hoses that were connected to the trach. It does the same thing that our nose does and heats the air that he breaths. It also puts moisture back into his lungs. Picking this little boy up is so nice with no heavy hoses hanging around his neck. Friday night was his first 24 hours with no respirator assistance. He is doing very well. All blood gases are good and Grady is good.
Grady has plans the next couple of weekends. He will be spending them with Mommy and Daddy. It is part of the process to getting him out of the hospital. We are so close that it is getting exciting. It is also getting every one of his care-givers in a rush to get all their paperwork done. He is having a lot of visitors because they all need to get one last follow up on him.
YES! Grady is coming home soon. We still have some planning and prepping, but it is getting close to time to bring this boy home. What a blessing that is going to be.
Well, more soon. I hope you all have a very Merry Christmas.
Talk soon,
JoJo

Tuesday, November 23, 2010

Grady had visitors




What a day Grady has had. He had surgery first thing Monday morning to have his internal shunt put back in. That involved three different incisions. Ouch! Little G spent the afternoon off the veny. WooHoo. He did fantastic. As you can see, he also had some visitors. This is Grady's Great Grandmother. Is she fabulous or what? Off the airplane and straight to the hospital to see her great grandson. MiMi came to visit and she was the first person to get to hold our little man, after surgery. As you can see, his surgery went as expected. The surgeon told us that we should be done with surgery and if G has a good night, he can go back to his old unit in the morning.
Well, we are back on the old unit. Do you remember TCU? Man, how great it is to know that we will work on getting this boy off the respirator and that is all we have to work on. There is physical therapy and occupational therapy, but G loves that. Remember the baby massage? Me too! Our little guy can now start working on sitting up and reaching out and getting home! We have not talked about the doctor's plans yet. Hopefully, we will know something very soon. Grady is off the respirator 8 hours a day now. He has not shown any signs of struggle and that tells us what we have always known. Grady is ready to get off that machine.
We want to wish all of you a happy Thanksgiving. Enjoy your families and loved ones. Thanks for all your prayers and support.
Talk soon,
JoJo

Monday, November 22, 2010

Out of Surgery

Once again, Grady has come through surgery like a trooper. He is doing well, has been awake for a little while. As soon as he can have some food, he will be ready to boot scoot his way back to TCU. One more night in the ICU and off we go. Our little man has his internal shunt back. One less attachment to keep him down. Give G a few days and we will be able to pick him up without ANY attachments what so ever. It wil be the first time Mommy or Daddy has held this little one with the freedom to walk around. Well, guess I better get back to little man.
As always, you are the best support any family can have. Thanks for loving my children and praying for them.
Talk soon,
JoJo

Wednesday, November 17, 2010

Surgery Updates

Grady did just fine for this last surgery. Looks like we have one more. Monday, they will give Little G his internal shunt back. Today, they opened one more cyst. Mommy and I got to view the last CT scan and got a better explanation of these cysts. They are actually normal fluid pockets that we all have. Grady's problems came from the staff infection. His brain 'walled off' these pockets which formed closed pockets. This is what the surgeon keeps referring to as cysts. He goes in and puts a hole in the wall. This allows the pockets to work together and drain, like they are suppose to. So, our little man now has all but one pocket working with the others. As long as he does not have any infection from now until Monday, they will give him a new internal shunt. So, there you have it. Five minutes with the surgeon and we now have a clear picture of everything that Grady has had working against him. As of today, this should all be taken care of.
When I left him, tonight, he was only requiring tylenol and motrin for his pain. There is a two inch incision from the top of his right ear, heading to the top of his head. It looks pretty painful, but the boy is a little trooper. As long as his belly is full, he sleeps, plays and watches his television. One of his doctors, from upstairs, came for a visit. Grady was talking to her the entire time she was there. He had this look on his face that made me think he was telling Beth to let him back upstairs because they were letting the little green men take him away too often. He is a charmer, that grandson of mine. He is already working on the ladies.
Well, I will try to get some pictures on here, of our precious little rock star as soon as I can.
As always, thank you so much for your love, prayers and support. You give us all the strength to continue through these days.
Talk soon,
JoJo

Non-Emergency Surgery

Well, here we are again. Grady is in the operating room, as I type. Dr. H had a long surgery cancel today so he wants to go get the cyst on the right side. We are still going to watch the one at the base of Grady's head. Yesterday was a busy day for Grady, also. He had a CT scan with contrast. That was not such a good day. They allowed the pressure in his head to build so the contrast would get all around. Grady was not best pleased. After the test, they released the pressure and we had our little fella' back.
Today's surgery will take about an hour. Of course, that means we will wait about three hours before we see Little Man again. We were suppose to have an MRI. We did and they wisked him off to surgery once they saw what they needed to see.
Since I don't have any news on the surgery, let me just tell you that Grady has been working hard to get off the respirator. He is up to six hours a day without assistance. As far as Grady is concerned, there is no difference. He sails through his 'trial time' without any change in his day. Now, when they put the respirator back on him, he coughs. I guess the pressure assistance irritates him. We probably would cough too if we had a machine puff air in us. Once he gets the idea that the hose is back on, Grady will grab ahold of it. Sometimes it seems like that hose has become a toy for G to hold on to. So far, he has only jerked the hoses off a few times. Most of the time, it is just a part of the room. But the freedom it gives us not having to move hoses as we move the boy, is so wonderful that we are the ones getting impatient for the hoses to be off for good.
As for today, it looks like Grady will keep the external shunt until Monday unless the doctor feels there is no risk in putting his internal shunt back in. Most likely, we will have to wait until Monday. With all the infections that Grady has had, I don't see Dr. H taking that risk. But who knows what this wonderful doctor will decide to do! So far, he has made all the difference in our little guy. Well, Grady has done some of that himself.
I will put a note out here when we get this little trouper back to his room.
Thank you all for your prayers and support.
Talk soon,
JoJo

Saturday, November 6, 2010

8 Months old



Today has been a big day for our little man. Grady was able to get out of bed and Mommy finally got to hold him. It has been over three weeks since Grady has been held. It is way past time. As you can see, Grady is doing well. He continues to recoup from Monday's surgery. He is taking all of his meals through the bottle again. This is the first bottle, in three weeks, that Grady has taken sitting up. Maybe we needed to hold little G more than he needed to be held......nnnnaaaaahhhhh! As you all know, there is nothing better than holding such a precious little bundle in your arms.
Can you believe that tomorrow, our little man will be 8 months old? Time has really disappeared. You might think that the hours would drag on, sitting in this hospital all the time. It is amazing how fast the days have gone by.
The doctors are running cultures on Grady every day. It takes about 3-7 days for this infection to appear. So far, we have one positive results and one negative. We will stay in the ICU until they internalize the shunt. The good part is that Grady is not battling the fever. He is on three different antibiotics for this and they seem to be fighting the infection off. The doctor did explain to us that as long as Grady has these foriegn objects in his body, he is at risk for infections. We are just going to be extra careful from now on. Right down to using the gloves to change his diapers. Another blessing we have is that our little guy does not appear to be loosing weight like he did the first time. As long as he can keep his weight and strength up, he should be able to kick this infection quickly.
Well, thanks again for all of your support and prayers.
Talk soon,
JoJo













Thursday, November 4, 2010

Continuing to improve


Well, Grady had a rough night the day of surgery. He spiked a very high fever but he was already taking the antibiotic for the infection so the fever broke around 12:30. Grady was able to get some much needed rest. Day two brought sedation and pain meds. Grady slept about 24 hours. Day three brought a bright eyes little boy that wanted his bottle back. Today, Grady woke up happy. He has been looking around his room, checking out all of the new colors and shapes. This room has walls to keep the sounds of others out. This is the first time , since the surgery, he has really cared where he was. Grady continues to control his own temperature. He will spike a small fever, but it will break before he gets any tylenol or motrin. That is a very good sign. We were told, in the beginning of this, that he would be very sick for about a week. Looks like, once again, Grady will have it his way. He only wanted to be sick for a couple of days. Now we will just hang out here until they change all the hardware. The next surgery will give little G new hardware and an internal drain. I am hoping that we will be able to get him out of bed after that. A couple more weeks of fighting this infection and he should get his internal shunt back.

Well, that is all for now. I will get a picture of this little snuggle boy on here when I get back to the trouse. Thank you all so very much for all your prayers. Looks like we may be here for some time. Hug my kids when you see them.

Talk soon,
JoJo

Tuesday, November 2, 2010

Cultures never lie

Mommy was nibbling on Grady!


Grady is recouping from surgery. He began running a fever the morning he was scheduled for his shunt to be internalized. Guess what they found?!?!? Infection! So the surgery plans were changed to a new, clean external shunt. Grady is still in the PICU and he is still confined to his bed. This will lead to another surgery in about two weeks that will give him new hardware and an internal drain. After another two weeks, or when Grady is completely infection free, the surgeon will put the internal shunt back in. We may be in the PICU for as much as a month. Anyone up for a hospital turkey dinner? Looks like Grady and I will be dining in for Thanksgiving.

For now, Grady is receiving drugs to keep him relaxed. The doctor replaced his stitches a little bit ago. Looks like Grady has to have a certain material for his stitches or it will not hold. This boy has the sweetest and softest skin you could want, but even that can be an issue when you need someone to sew you up.

At least the boy is well fed and well loved. As we sit here, nurses, doctors and other very helpful staff members come by to see how our little G is doing. He is pretty well known on this floor, too. He must have signed up for the membership. Someone take his debit card away.

As Grady continues to improve, I will keep you all updated. I can't give you a picture right now, but check back later. I will add some when I am not at the hospital.

As always, you keep us going. Thank you for your prayers, love and support.

Talk soon,
JoJo

Sunday, October 31, 2010

One more surgery




Well, looks like we have one more surgery to endure. Grady's surgeon will put the shunt back in tomorrow. After 3 weeks in the PICU, they will not try to reach the cyst on the right side. After many cultures and MRI's, Grady has been declared clear of infection and can have his shunt back. Funny how we cried and worried over him getting the shunt in the first place and now we can not wait until it is returned. He will be getting all new hardware so that will require three incissions. Poor little fella will have stitches in two places on his head and his tummy. His surgeon has been in Grady's head more than anyone ever imagined, including Dr. H. At least little G has had the same surgeon every time.


This is the first family picture we have had an opportunity to get. It took a little time to get everyone looking at the camera at the same time. You can just imagine trying to get them all to smile for the picture. Well, Grady didn't smile, he was a little curious about everyone trying to get into the bed with him. If we could read his mind, we would know that his big concern was who had his paci. The look on his face says, I will share my bed, but leave my bottle alone.


Our little man is taking 4 ounces now. He really seems to enjoy getting his bottles. All feeds are now given from a bottle. They call it add lib, but his nurse called it on demand. I like that a lot better. It sounds more like Grady. Taking the bottle away just to get a burp out of him causes Grady to turn a beautiful marroon color. Needless to say, he is not best pleased when you take his groceries from him even for a minute. Once he has his belly full, Grady does his leg lifts. Exercise time comes after every bottle. This is something that Grady started doing about two weeks ago. I guess he is trying to get a head start on his six pack.


I will let you know how the surgery goes and get some more pictures up. We are looking at the noon hour and it should take several hours. If I get the chance, I will update this from the hospital.


Thank you all for your prayers and support. God has placed you in our lives and we could not ask for a better extended family.


Talk soon,

JoJo

Friday, October 22, 2010

Hangin' out in the PICU

Well, here we are still in the ICU. Grady is doing well, he just has to be monitored by these nurses while his shunt is on the outside. Looks like we may have another surgery once his ventricles are expanded. Sounds a little scary, but the surgeon is hoping to go through Grady's right ventricle to get to the last cyst. Hopefully, he can because that will be a little less invasive. Of course, all surgery is difficult, but his doctor was telling us that brain surgery is easier to recouperate from than most other surgeries. HHHHMMMMM. I wonder how many he has recouperated from???? Just kidding. Thank you, Lord, Grady has one of the best neurosurgeons there is. Dr. H. is suppose to be the best when it comes to pediatrics. Now, he did tell us that Grady has not done anything normal yet. Dr. H admitted that our little man has been a challenge.

Funny how things happen. Makes you wonder how God planned all of this eons ago. I was talking with another parent yesterday, from W.F.. Man, this world gets smaller every day. When you pray for our little G, you might just add all of these precious little people in your prayers. You don't need their names, just knowing that they are all fighters and all deserve to have someone loving and praying for them is enough. We have made several friends here. Some of them are patients and family and some are the wonderful nurses, therapists and specialists that help Grady and all the other kiddos here.

As always, love you guys and thanks for loving my children. Your prayers and support are truly what we need.

Talk soon,
JoJo

Friday, October 15, 2010

Successful Procedure



Well, Grady is out of surgery. They removed his internal shunt this morning. His doctor wants to make sure that there is no bacteria attached to outside of the shunt. It will go for testing and we should have some results next week. For now, Grady has an exterior shunt and he will remain in the PICU until we get an all clear from the different tests that have been ordered.


Grady is doing wonderful. He was awake for a few minutes. Just long enough to peek at Mommy several times to make sure she was there. Then, off to sleep land he went. Grady seems to need natural sleep after anesthesia wears off. He will get to return to his regular schedules for everything, once he is alert and wide awake. That means he gets his bottle back as soon as he can tolerate it. He now has an order to allow him to set his own schedule and amounts. Of course, we are keeping him within reason. Don't want the little one to pop just because he wants to be a little piggy. When he goes over his regular 90 mls, we call it dessert. For now, Grady can sleep until his tummy wakes him up.

If you are a friend of mine on facebook, I put a short video of Grady for you to see. I tried to get it out here on the blog, but something did not work. Must be operator malfuntion.

Thank you all for your prayers. We all know that is what is getting Grady through all of this. You have to know how very precious you are to all of us. For now, just hug your precious loved ones and we will give Grady kisses from all of you. Does that mean we need to kiss him until sundown?


Talk soon,

JoJo

Thursday, October 14, 2010

Funny faces of Grady















Hope you enjoy these pictures of our little guy. He has such funny faces sometimes.
JoJo

Unexpected Update

Well, just thought I would take a minute to fill you all in. Monday, Grady went back under the knife to clean up the incision from last Monday. We got him all settled into the PICU for a few days. He did wonderful for the little procedure, but they did not like the outcome of the cultures they took afterward. So, we are now waiting our turn to have the shunt removed. One of the team from his neurosurgeons group explained that bacteria likes to cling to any hardware and they are thinking that may be the case with our litle guy. Grady is scheduled for surgery Friday morning.

Sorry there is not picture. We are at the hospital and can not put his picture on their system. I will add a picture once I get to my computer.

Grady is doing well. He continues to gain weight for now. Once the antibiotics kick in, we may be loosing again. He is still enjoying his bottles and continues to eat all he can get. Grady can have as much as he will take, but we stop him at a reasonable amount. He is getting comfortable with 95 to 100 ml. Pretty good for this little fella.

Well, again we are asking for prayers. Grady will have to remain in the PICU until there is an all clear from infectious desease doctors. He will have an external shunt and that will require constant monitoring.

Just know how much you all mean to us.

Talk soon,
JoJo

Thursday, October 7, 2010

7 Blessed Months with more to come








Well, since the last time we talked, there has been a little excitement in Grady's world. First thing, he is 7 months old today. It is so hard to believe that this little guy has been blessing our world for the past 7 months. Man, how time has sped by. As you can see, he is quite the little sweety. He has not grown much, but with all the surgeries and infections, his little body has been concentrating on getting stronger and fighting to maintain. Once he is better, I believe he will start growing again. He has already gained some of the weight back. He lost over 1 pound and that is a lot of weight for this little boy.

Monday, Grady went back to the operating room. He did wonderful and Tuesday's MRI tells us that his procedure was successful. Thank you all for the prayers and support. Grady is doing well, this week. He no longer needs the pain meds and had his first bath today. We still can't wash his head (not much hair to speak of), but he did enjoy sitting in the warm water.

After a big bottle, he setted right down for an afternoon nap. Nap time is wonderful now that Grady has decided to participate. His new schedule has helped with that. He gets his breakfast an hour earlier, now. Yesterday, he took 5 mls more than he usually does. We decided he was needing some dessert.

Well, I will not promise to get better about the updates. Seems like every time I do, something happens that keeps me at the hospital longer. So, I will update the next chance I get and hopefully that will be soon. As always, we can never thank you enough for all of your love, support and prayers.

Talk soon,

JoJo

Wednesday, September 29, 2010

MRI today


Today, Grady is having another MRI. We will find out just how great the antibiotics have done. I know that our little guy will have beat this infection. He is one of the toughest little people I know. Once we know the results of this MRI, Grady can continue to work on getting off the respirator.

While he was on two different antibiotics, Grady dropped over a pound. His doctor decided that Grady should get one long meal throughout the night. Must be pretty good stuff because he is gaining his weight back. He lost one chin and part of his little butt cheecks. It is good to see those pinching spots returing. Holding him close, you really notice just how tiny his hiney is.

The doctor has also given G back his bottle. You must know by now, how much Grady loves his groceries. He wants that bottle every time you put him in your arms. He is assuming the postion and expects a bottle to be there when he is ready. All I can do is laugh at him. Poor little fella. Mommy held him this morning and that was tough. NO bottle because of his MRI. Food was stopped at four am and Little G wanted Mommy to feed him. Needless to say, Grady was a little cranky.

The 'Giving to Grady' Golf Tournament was a blast. Thank you all for a wonderful day. It was so much fun seeing everyone and driving that cart from Hole to Hole. Hope everyone had as much fun as we did. We are all so blessed to have such a wonderful group of people in our extended family. I hope you all know how much you mean to all of us.

As always, thank you for your continued prayers and support. One day soon, you will get to meet this precious little man. Just remember, when you meet G, don't tell him that all of his little secrets are on the Web!

Talk soon,

JoJo