Lots of new changes

Grady is recieving new settings, again. This little boy has taken on most of the breathing. He has certainly taken on this challenge. Grady's doctor began the weening last week. This week, we are looking at more changes. Today, the respirator pressure is getting dropped to 4. When Grady moved to the TC Unit, it was in the 20's. Three days ago, they added the Passy Muir. This is a connection that forces Grady to exhale past his voice box. Little G has been talking without this connection, but this allows him to be heard much better. It adds volume to his voice. He did not like this very much and only tolerated it for about a minute. Grady will get to try this daily until he gets used to it. The way this little man has taken all his other changes lately, gives me confidence that this will not slow him down either.

Grady is now taking three bottles a day and those bottles are 50 ml each. Are you surprised to know that he is not best pleased when the bottle is empty and he can not have any more? I'm not. He has also moved up to 75 ml each meal. As he continues to gain weight, the doctors will up his amounts. Don't tell anyone, but Grady has a burp that can be heard across the room. His burps are not little or just one at a time. Grady will be burping the alphabet before we get him home.

Grady has a mobile that plays music. He loves it. The music is very calming to him and helps drown out the other sounds in the unit. One thing he seems to not appreciate though, is one button on his mobile. It plays a song from Bach. It is pretty funny to watch his expression. Much like the one it the picture above. This song will raise his blood pressure and make him fidget. There is another child on the other side of the unit that cries and Grady can hear him. Grady will give me this look, that makes me laugh. He does not like that sound, either. I keep telling him that I can not stop that sound, so we just hit a button on his mobile to help cover the crying. This seems to give Grady something to concentrate on and makes him happy again.

As always, thank you all for your love and support. Grady is such a blessing and I can not wait until all of you get to meet this little cutie in person. I pray that God blesses each of you as much as he has blessed this family.

Talk soon,
JoJo